Continue, Adjust, or Stop Antipsychotic Medication: Developing and User Testing an Encounter Decision Aid for People with First-Episode and Long-Term Psychosis

Yaara Zisman-Ilani, College of Public Health, Temple University
David Shern, Johns Hopkins University
Patricia Deegan, PhD & Associates, LLC, Byfield, MA, USA
Julie Kreyenbuhl, University of Maryland School of Medicine
Lisa Dixon, Columbia University
Robert Drake, Dartmouth College
Manish Mishra, Dartmouth College
Ksenia Gorbenko, Icahn School of Medicine at Mount Sinai
Glyn Elwyn, Dartmouth College

Open access publishing fee supported by the Dartmouth Open Access Publishing fund.

Abstract

People with psychosis struggle with decisions about their use of antipsychotics. They often want to reduce the dose or stop, while facing uncertainty regarding the effects these decisions will have on their treatment and recovery. They may also fear raising this issue with clinicians. The purpose of this study was to develop and test a shared decision making (SDM) tool to support patients and clinicians in making decisions about antipsychotics.