Author ORCID Identifier

https://orcid.org/0000-0002-6856-7631

Date of Award

Spring 3-31-2023

Document Type

Thesis (Ph.D.)

Department or Program

Health Policy and Clinical Practice

First Advisor

Glyn Elwyn, MB BCH, PhD, MSc

Second Advisor

Marie-Anne Durand, PhD, MSc, MPhil

Third Advisor

JoAnna K. Leyenaar, MD, PhD, MPH

Abstract

Statement of the Problem

Good communication in clinical encounters is a key component of quality healthcare. Improving clinician communication would benefit all populations, however patients with lower health literacy or who are socially disadvantaged stand to benefit the most due to the complex content in clinical encounters. Shared decision-making can improve outcomes, but shared decision-making cannot occur without good clinician communication. In this dissertation, I reviewed interventions for facilitating shared decision-making for socially disadvantaged patients. Then, I examined the use of spoken plain language, or clinician use of familiar, clear verbal language when communicating with patients, and developed a prototype for measuring clinician spoken plain language.

Methods

First, I conducted a systematic review and meta-analysis of trials that compared decision-making interventions to usual care for patient-reported and other outcomes. I also examined whether these interventions improved outcomes more for socially disadvantaged populations. Then, I conducted a qualitative analysis of clinical encounters to determine the relevant components of spoken plain language. Finally, I assessed these and other variables across an existing dataset of encounters and undertook a factor analysis to determine the final set of variables for inclusion in a potential measure of spoken plain language.

Results

In the systematic review, I found 38 decision-making interventions that improved patient-reported knowledge, patient-clinician communication, reduced decisional conflict, and the proportion of people undecided. Overall, the interventions did not improve outcomes more for socially disadvantaged populations. In the qualitative analysis, I found two measurable elements of clinician spoken plain language: the degree to which clinicians explain medical terms and break down information into simple phrases and units of speech (turns). In the quantitative analysis, I found four unique constructs to measure: speech speed, turn length, turn complexity, and word complexity.

Conclusions

Interventions to facilitate shared decision making for socially disadvantaged populations improved outcomes but did not improve inequalities. The potential measure for evaluating the extent to which clinicians use spoken plain language is ready for further testing, which should include the feasibility of automation and the delivery of results back to clinicians for self-reflection and improvement.

Comments

Fourth advisor: A. James O’Malley, PhD

External advisor: Debra L. Roter, DrPH, MPH

Original Citation

Chapter 2 is published:

Yen RW, Smith J, Engel J, et al. A Systematic Review and Meta-Analysis of Patient Decision Aids for Socially Disadvantaged Populations: Update from the International Patient Decision Aid Standards (IDPAS). Med Decis Making. Published online June 21, 2021:0272989X211020317. doi:10.1177/0272989X211020317

Available for download on Wednesday, May 14, 2025

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